endodiary

A daily (or as often as I can) diary of how I cope (or don't) with endometriosis. I have recently started a new treatment based on changing my diet. We'll see if it works

Friday, August 25, 2006

Sharing the pain Day 1

I have suffered for endo or endometriosis for 14 years now but I was only diagnosed 6 years ago. Since then I have tried a variety of treatments including hormonal and surgery but the pain continues. I am now starting a new attempt with nutrition as the main weapon. It will take a long time to give me the results I need - no pain, a normal life, clear skin, no mood swings, normal weight and so on and until then I think I need to share the pain to encourage me to hope but also to see if there is anyone else out there who can understand.

So this first contribution was written yesterday. It is a bit graphic but endo unforutnately isn't a "nice" disease.

24th August:

There had been a dull ache in the morning. We went to lunch. About 3pm cramps started. Bleeding started around 3.30. Bleeding further back than usual? Took first pain killer (800mgs) around 4.15 cramps very bad. Finding it difficult to move, do anything else. Leave office. Concerned about driving.Repeatedly get feeling like someone walking over my grave. Get very hot but cold at the same time. Gone very pale. Get home. Pain has been like someone stranling insides. Some pulses but unlike before the downward part of pulse is excrutiating pain. Face and upper chest are bright red.

Pain is in lower abdomen and all around pelvic area. Need to get something out. Go to the loo. Just before I pass a stool flash of searing pain in left abdomen. Fresh blood.

Take another pain killer (800 mgs). Fall asleep. Wake at 9.30pm. Hair is wet from sweat. Pain has abated. Blood on pad is in normal position, slighter darker. Is there a growth in my intestine? Is that why there was pain and blood on Saturday?

Today:
I got to work after 11.30am. The pain was better than yesterday but very much still there. I just took two nurofen plus, I don't want to finish the strong ones and then be left with nothing. Lots of clots, very dark blood. Lots of bleeding all day. Pain is there but not taking over. Feel like I am wrapped in cotton wool. When I woke up this morning I pulled down the skin under my eye and it was as white as snow inside. Within an hour the colour had gone back. How weird is that? I don't have any cravings for chocolate - this is UNHEARD of. good though. probably still have one just from habit.

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